Thursday, October 4, 2012

a VERY special thank you to Dr. Drew Pinsky / HLN!

Status Update

STATUS UPDATE: Regrettably, the great news about Tanya's IGF-1 levels dropping down into in the normal range was very short lived. Tanya's recent blood work shows her numbers back up in the 500's. 
 
Acromegaly can strike anyone at any age. 

Monday, September 3, 2012

Thank You!

We're sending out a heartfelt thanks to all those who sent in donations to help with Tanya's medicine expenses.


KTNV News13 visits Tanya and Anne...



Please note: I've informed a KTNV writer/web producer that it is incorrect to use the term 'gigantism' regarding Tanya (and Anne), and that the proper diagnostic term for their illness is ACROMEGALY.

KTNV.com

Sunday, September 2, 2012

The week that WAS!!!

First of all, we had the company of this lovely gentleman (photo right) from a UK media group, spend almost a week filming and interviewing us (Team Tanya). We really enjoyed having him here. He took great care to dig deeply into 'who' Tanya really is...because we all know she is NOT defined by her Acromegaly. A heartfelt "thank you" to Mike. We can only hope that the editing process does your artistic and caring footage justice.

ps...In-and-Out Burger is asking where you've disappeared to!


Then we got a poolside visit from the lovely KTNV, Las Vegas, News13 reporter, Katie Crowther (Click on link for Katie. Photo Left: Mike and {SORRY, WE FORGOT YOUR NAME!!!} News13 Camera Guy).

It was a bit of a media-fest having TWO companies hanging out with Team Tanya, but we welcome the attention because it's always an opportunity to spread pituitary tumor awareness with others. Remember, it can happen to A N Y O N E!

Tanya's great news of normal-for-the-first-time-in-10-years, IGF-1 growth hormone level, made big news (video, below).

ABC NEWS and another UK media group, then contacted us for permission to spread Tanya's Great News. Are you kidding? OF COURSE! Because...we welcome the attention. It's always an opportunity to spread Acromegaly and pituitary tumor awareness with others.

Then, it happened...Tanya's website, blog, guestbook and virtual candles, EXPLODED with a surge of activity, causing the website to exceed bandwidth (for the first time, ever)!

After ALL that, remember this guy (photo, right)Spencer Lubitz, our FAVORITE 'blue jeans and tennies' reporter from local KTNV News 13, showed up today (photo below) to capture a monumental event...US Army Captain, Anne Barlieb came out to celebrate Tanya's GREAT news with her, Live and in Person! Captain Anne was diagnosed with Acromegaly, too.  

(photo, right: Spencer Lubitz and camera man "Will" interviewing Tanya at the Acromegaly 2012 Convention in June at Red Rock Hotel/Casino, Las Vegas, NV.)

Above: L-R, Spencer Lubitz, US Army Captain Anne Barlieb, and Tanya Angus
September, 02, 2012

Wow, are we ever blessed? You Bet! 

Please visit Tanya's Website for more information!

Saturday, September 1, 2012

Thank You!

In the past 24 hours Tanya's website, blog, emails, donations and virtual candle pages have all experience a massive surge of activity. So much so, that the website blacked out at one point with BANDWIDTH LIMIT EXCEEDED. I've been able to play catch up on all fronts, with some success.

It's Tanya's hearts desire to help educate the public about early detection of Acromegaly...because it can happen to anyone.

If you or someone you know has been diagnosed with Acromegaly, please visit and become a member of the website our dear friend Wayne Brown created: ACROMEGALY COMMUNITY AND SUPPORT.

Thank you all for your wonderful out-pouring of love, kindness, and tremendous support for Tanya, Karen, the family and myself!

Tina

Tanya's Virtual Candles at Gratefulness.org
Tanya's Official Website at TanyaAngus.com

Thursday, August 30, 2012

Amazing News!!!

For the FIRST TIME since Tanya's original Acromegaly diagnosis, her IGF-1 levels are NORMAL!!! Tanya's Mom (Karen Strutynski) has spearheaded some experimental doses in Tanya's Growth Hormone regulating injections. It appears that this new dosing is working!

Tanya had an MRI just yesterday and preliminary results are in, showing ZERO tumor growth! So IF the secondary blood test confirms the 283 (or so) IGF-1 level from her prior blood work, we can plan for a debulking surgery...YAY!

New Report from Las Vegas KTNV News13:

Wednesday, May 23, 2012

Home Again

STATUS UPDATE~
May 22, 2012
Tanya is out of the hospital. She had a blood clot in her leg and a few other issues, but is relaxing at home. Once again, thank you for your good thoughts and prayers!
If you feel so inclined, please light a virtual candle for Tanya . She can read these while on the mend.
Thank You!

Thursday, May 17, 2012

Update on Tanya

May 16, 2012
Tanya is in the hospital once again with a blood clot in her leg.
Thank you for your good thought and prayer~

Wednesday, April 4, 2012

Update on Tanya

April 4, 2012
Tanya is home from the hospital, but is now taking oxygen treatments.
Thank you for your continued thought and prayer~

Thursday, March 29, 2012

Tanya is in the hospital...

March 28th, 2012

I just spoke with Karen; Tanya has been admitted to the hospital and is in I.C.U. She was vomiting and running a very high temperature. The cause of this setback is unknown but Doctors are checking for a bacterial infection. She's being given high doses of antibiotics and currently her temperature is normal.

We ask for your prayers and if you feel so inclined, please light a virtual candle for Tanya (she can read these while being hospitalized).

Thank You!